September 15, 200620 yr September 14, 2006 at 08:49 PM EDT Justin's new tenative release date is October 30th. If he keeps progressing then insurance will continue to pay. When he stops progressing they will have to discharge him. Justin is working really hard and wants to come home so badly. He tells everybody all the time "Im going home soon" "are you excited?" I can't wait until he comes home but he has a while to go and he is where he needs to be. When he comes home he will need 24/7 care. Not sure how I am going to pull that one off but I still have about 6 weeks before that happens. Insurance or Medicade will not pay for any homecare so I will have to rely on friends and family. He has a long hard road but he is determined and I know he will be fine it will just take a while. One of the therapist said it will be a year or longer before he can go back to school or work. He's really smart about a lot of things yet at other times he has a hard time remembering things. We met with the therapists on Wednesday. Speech therapy results: -He needs to talk slower and louder -He's having a hard time focusing and remembering things. Like what he had to eat for lunch. -He needs someone to sit with him at all meals, he eats to fast -He's implusive, he jumps up before they are telling him what to do, he needs to slow down -They are focusing on his swallowing - he gets vital stem electrod shock for an hour a day -I asked them about removing his feeding tube and the speech therapist is supposed to talk to the doctor about it. She wasn't sure if the doctor would remove it or if Justin will have to go to St Elizabeth's -Next week they might do another swallowing test on Justin Occupational therapy: -Working with Justin on dressing, bathing and grooming - she said he did well with showering himself. He sits in a chair in the shower -Working with him on his trunk control which has improved from last week. He now pulls himself up in a sitting position while he is in bed and sometimes just sits on the side of the bed. -She plays cards and does other activities with Justin Physical therapy: -Working with him on walking - they have him pushing a shopping cart full of weights. He has been walking 400 to 500 feet each day. She also said his trunk control is getting a lot better. His right side is weaker than his left side. After Justin is discharged he will have to go to outpatient theraphy 3 times a week. He will meet with all 3 therapists and will have a 45 - 1 hour session with each one with a 15 minute to a half an hour visit between sessions. Justin is such a sweetheart and it is so hard to leave him each day. Calmness is the way that we show that we are trusting in God.
September 17, 200620 yr I have been a BGP member for a few years and I've never looked in the General Discussion forum.......until this morning. I have no idea why i clicked on it but this story immediately caught my attention. I spent over an hour reading every word of this thread and I am truly touched by Justin's story. (I am in Ashland, KY) Ever since I read it, I cannot get your family off my mind. I thank God for the miracles he has bestowed upon Justin thus far and I pray that he continues to work in your lives. My family will pray for your family. May the peace of God's love fill your hearts.
September 17, 200620 yr likes2watch - You should spend some more time here now. Lots of fun stuff and good conversation going on! :thumb:
September 17, 200620 yr Yes this topic is very intriguing, I don't know the kid but I can't imagine going through what he has gone through, I read it everytime an update goes up although I've never commented on it but I sure hope this guy gets back to normal soon.
September 18, 200620 yr September 17, 2006 at 07:05 PM EDT Hey check out the new picture of Justin taken on Saturday. Doesn't he look great??? He is sitting in my new/used SUV. He climbed up in it from his chair and said "come on mom take me home, just do it". He was slow dancing with one of the nurses today. Mostly just swaying back and forth but he did take a couple of steps. It was after the Bengals won and he wanted to dance. He is counting down the days until he can come home. Thanks again to all for the visits, emails, prayers etc. It means a lot to me.
September 18, 200620 yr By the way, thank you for your comments. I know that most of you do not know Justin personally, but the prayers and comments are much appreciated. Justin has come a long way and continues to fight everyday. I can't even begin to tell you how much the Ingle family appreciates our support! :thumb:
September 22, 200620 yr September 21, 2006 at 09:03 PM EDT Justin had a modified swallowing evaluation on Tues at St Elizabeth and one at St Luke today. He failed both test so he can't eat anymore and is back on the feeding tube. His UES (Upper Esophagus Sphincter) is not opening as wide as it should. So food is going down in his trachea instead of his esophagus. He has been silently aspirating and is very lucky to not have gotten pneumonia. He is actual aspirating before he even swallows. Speech therapy will be working on helping him to speed up his swallowing and on getting his adam apple to rise up and down. Justin is not at all happy that he can no longer eat or drink anything for about a month when they will do another evaluation. Eating was a big enjoyment for him, it was one thing he could look forward to each day. The Lord will either calm your storm . . . or allow it to rage while He calms you.
September 22, 200620 yr That picture is awesome. Yes, he is beautiful! Know that: God works in mysterious ways and he obviously has his powerful hand on Justin. I continue to think about you guys daily.
September 23, 200619 yr September 22, 2006 at 08:57 PM EDT This morning I got a call from one of Justin's doctors (Dr. Heeb) He called to tell me that Justin's J-tube is coming out so they are looking for a surgeon to come and check it out. The surgeon is supposed to be there on Saturday morning. So Justin can't be fed through his tube and had to be hooked up to an IV. It took them from 8:00 to 3:00 before they finally got the IV in. Justin told me they "poked and proded him all day" and that "he hates needles and all these 'dang' tubes" . He is actually in good spirits about it all. He still says to everyone "I'm going home soon - Are you excited? I'm excited". I swear he says it about 100 times a day.
September 26, 200619 yr September 26, 2006 at 01:00 AM EDT Dr Davenport the surgeon came in on Saturday and said Justin's feeding tube was fine. So they started feeding him through his tube again. On Sunday he came back and stitched his feeding tube back to his stomach.
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